All Episodes
Displaying 1 - 20 of 41 in total
EP39 Rare and Relevant News Stories of 2023 TL;DR and Update
Welcome to the first 2024 episode of Signalise: a Dazzle4Rare podcast! Remember, we’re now airing on Fridays. In this episode, we’re looking at your rare and relevant ...
Bonus: 2024 Podcast Schedule Change
A quick ”bonus” episode to drop to let you know that we’ll be making some scheduling changes and 2024 will hopefully fingers crossed be a year of positive changes. But...
EP37: Four Paediatric Holiday Cheer Stories and UHC Day 12th December
In this festive episode, Kimberly shares a little holiday spirit by with heart-warming stories of children with rare conditions and their families finding hope.
EP36: Rare and Relevant TL;DR and an Update on ”Take Care of Maya”
Please note there are audio issues with this episode. I’ll be working to upload an improved version later on release date. In this, Kimberly shares a range of awarene...
EP35: November TL;DR Feat. a Message for Menkes Awareness
In this episode, Kimberly shares several important awareness events happening in November.
EP34: 2023 Halloween Special: Reel Struggles On and Off Screen for Rare Heros in Media, Feat. Original Spooky Jokes by Kimberly
In this episode Kimberly talks about actors with rare or less commonly understood conditions in sci-fi and horror media. The discussion begins with Bruce Willis, who h...
EP33: Kimberly Speedruns an October Rare and Relevant TL;DR Plus Network Good News
Please come back later today for links to the articles and social media profiles Kimberly mentioned in today’s episode. We’ll be making updates and corrections as needed.
EP32: September Rare and Relevant TL;DR and Returning Guest Daniel De Fabio on Global Genes Rare Week 2023
This week, we wrap up September, share October awarenes events, and feature some of Kimberly’s conversation with Daniel De Fabio of The Disorder Channel as they discus...
EP31: September Awareness Days, NORD Designates New Rare Disease Center, and Listener Voicemails
Kimberly explores September’s awareness days, upcoming webinars, conferences, and industry resources. She also highlights the inspiring ”Life After Diagnosis Day” on T...
EP30: September’s Awareness Dates, Community Clips, and Global TL;DR News feat. Kerry Wong & Lee Reavey
Dive into global rare disease awareness, featuring International Ataxia Awareness Day and insights from advocate Alan Thomas. Explore September’s awareness months, rar...
EP29: 7 Years of #Dazzle4Rare feat. Co-Hosts and Advocates from 2023
In this episode, Kimberly takes a closer look at the journey we’ve taken together over the last seven years with #Dazzle4Rare with guests Barby Ingle, Kerry Wong, Lee ...
EP28: Dazzle4Rare2023 Past and Present Co-Hosts and Participants
Join us in this special and reflective episode of Dazzle4Rare, where we take a journey through time with some remarkable individuals who have been at the heart of our ...
EP27: Empower and Impact Through July Awareness Months, Days, and More in Your Rare and Relevant TL:DR for mid-July 2023
Welcome to Signalise: a Dazzle4Rare podcast guest-hosted by Sam Fillingham, CEO of PIP-UK the Poland Syndrome Charity and Torie Robinson of the Epilepsy Sparks podcast...
EP26: Patient-Centric Opportunities in July for Advocacy, Support, and Awareness + Your TL;DR Wrap-up
In this episode, we dive into a range of events, discussing various awareness days taking place in July, and highlighting opportunities that focus on patient-centered ...
EP25: Minority Mental Health Awareness Month, The Big Listen, Plus More of What’s Rare & Relevant in July 2023
This week, we’ll be discussing what’s happening in the realm of awareness, highlighting both rare and non-rare awareness events, spotlighting upcoming conferences in ...
EP24: Happy Pride 2023 +Your June Rare and Relevant TL;DR
Welcome to another episode of Signalise! In celebration of Pride Month 2023, this episode delves into the intersection of LGBTQ+ pride with the URCIID (undiagnosed, ra...
EP 23 Bonus: Late May Rare and Relevant TL;DR News and Events
Welcome to this bonus episode of Rare and Relevant TL;DR! Our regular episode this week, the week of the 24th of May 2023 features a chat with Dr. Nicola Garnier of S...
EP22: Signalising Newborn Screening with Screen4Care EFPIA Lead, Dr. Nicolas Garnier
In this episode, we’re joined by Dr. Nicolas Garnier (French pronunciation: [ni.ko.la]) who’ll tell us a bit about himself and his work as consortium lead with Screen4...
EP 21: May TL;DR and Dazzle4Rare 2023 Housekeeping
We’re kicking off with a bang! May is jam-packed with event, awareness days, and news! Without further ado, let’s do the darn thing and get to Rare and Relevant, your ...
EP20: Rare and Relevent TL;DR and a Personal Check-In with You
We’re introducing Rare and Relevant, your TL;DR for all things rare, associated, and noteworthy in a in a quick and easy format. If the term TL;DR is new to you, it st...